Disabilities in general don't get taken seriously. In addition to ADHD, I have an eye deformity that requires $5000/year special contact lenses and just keep getting told to pound dirt :/

[–] Chrobin@discuss.tchncs.de 3 points 2 weeks ago (2 children)

You're not perhaps talking about keratoconus?

[–] Witchfire@lemmy.world 4 points 2 weeks ago* (last edited 2 weeks ago) (1 children)

Lol indeed, I'm surprised someone else knows about it.

It's a terrible fucking disability but there's like no research into it and insurance thinks they know better than ophtomologists

[–] Chrobin@discuss.tchncs.de 2 points 2 weeks ago (1 children)

My brother has it. I'm German, and he got an experimental treatment called crosslinking some years ago. They stabilize the cornea using a laser, and since then, he doesn't need contact lenses anymore, but glasses suffice. Nowadays, it's apparently proven enough that even the public health insurance pays for it. Now, by the price of the contact lenses you mentioned, I presume you're American, and it might be incredibly expensive, but you could still do a bit of research about it.

[–] Witchfire@lemmy.world 2 points 2 weeks ago* (last edited 2 weeks ago) (1 children)

I had cxl a few years back, his case sounds a lot more manageable. Cxl doesn't typically improve vision, it just prevents it from getting worse.

I'm in Canada, but it was also $$$ when I was in the US. For some fucking reason it's specifically excluded from the assistive devices coverage here. My ophto has been fighting them for ages

[–] Chrobin@discuss.tchncs.de 2 points 2 weeks ago

CXL stands for cornea cross-linking, so you have done it already. Then nevermind what I said. Good luck with your struggles in the future!

[–] prole@lemmy.blahaj.zone 1 points 1 week ago* (last edited 1 week ago) (1 children)

Is that the one where, if you don't wear contact lenses, your eyeballs might literally explode?

[–] Chrobin@discuss.tchncs.de 1 points 1 week ago

Nope, your cornea might fall out. At least I haven't heard of exploding eyeballs

[–] 0x0@lemmy.dbzer0.com 6 points 2 weeks ago* (last edited 2 weeks ago) (1 children)

I feel like an extraterrestrial when someone tries to teach me a new board game. I don't understand what they're telling me, and they don't understand what I'm asking (or WHY I'm asking it). I feel like the instructions could almost always be expressed succinctly as a flow chart, but I've never actually encountered that in the wild.

[–] Axolotl_cpp@lemmy.dbzer0.com 5 points 2 weeks ago

A flow chart? That's interessing... I never made a board game but if i ever happen to, be assured that i am prolly gonna use one, it just seems such a good idea