yeah her YouTube channel still posts updates from time to time. shoutout to her husband too. they got married and almost immediately became patient/caretaker. it's probably exhausting for both but they're both resilient, hopefully they'll get out of it and live a stress free happy life. sure deserve it after going through this.

[–] fibojoly@sh.itjust.works 1 points 2 years ago (1 children)

They don't remember. On account of their brain injury.

[–] JackbyDev@programming.dev 1 points 2 years ago

No, not everyone who got long covid didn't take it seriously. But the people who were super spreaders or spread misinformation are certainly to blame.

[–] walter_wiggles@lemmy.nz 0 points 2 years ago (1 children)

Ooo interesting. The parallels with CFS are fascinating.

[–] Varyk@sh.itjust.works 0 points 2 years ago (1 children)

I wasn't even aware of that. chronic fatigue syndrome was actually real.

I thought I was just like side- depression.

is there anything known about CFS?

what causes it or how long it lasts or anything?

I know nothing about it except for like a comedy sketch from the 2000s at some point.

[–] HobbitFoot@thelemmy.club 0 points 2 years ago (1 children)

CFS is a syndrome rather than a disease because, until recently, it only presented as symptoms instead of as an identifiable problem with a person. I know that a some people who get diagnosed for CFS get later diagnoses as neurological disorders like multiple sclerosis.

It sounds like the more powerful MRI scanners are seeing inflammation in the rest of those suffering from CFS.

That would mean CFS is a lifelong degenerative condition.

[–] Varyk@sh.itjust.works 0 points 2 years ago (1 children)

this is the extent of what I knew about CFS, I never heard of ME, I thought CFE was still a collection of symptoms that didn't even indicate a single underlying syndrome.

I like the progress, clearly seeing brain stem inflammation sounds like comic book talk from 20 years ago.

they're going to see inflamed dendrites next.

oh but isn't clogged dendrites how they identify multiple sclerosis already?

clearly I have to read more about this. catch up a bit.

thanks for the explanation.

[–] HobbitFoot@thelemmy.club 0 points 2 years ago (1 children)

My understanding is that MS is usually defined by the deterioration of the myelin sheath in brain cells which can be detected through MRI's.

[–] Varyk@sh.itjust.works 1 points 2 years ago* (last edited 5 months ago)

ohet